Protocol summary

Study aim
1. Determine the effectiveness of occupational therapy in the elderly with dementia and their caregivers 2. Determine the cost-effectiveness (economic evaluation) of occupational therapy in the elderly with dementia
Design
Clinical trial with control group, triple blind, randomized (blocks of size 4). 100 patients were divided into four intervention and control groups and received intervention between August and October 2019.
Settings and conduct
After randomization and assignment of patients in each group, the elderly with dementia received a 12-week occupational therapy intervention (2 sessions 1 hour per week) at home. Caregivers also received 12 weeks of intervention and occupational therapy counseling at home and at the Brain & Cognitive or Yas Clinic in Tehran.
Participants/Inclusion and exclusion criteria
Inclusion criteria: Age 65 and older; Neurologist's diagnosis based on DSM-IV criteria for dementia. Non-inclusion criteria: Relatively severe and severe dementia; The patient's unwillingness and cooperation to intervene
Intervention groups
Intervention group 1: Elderly patients with dementia who receive occupational therapy with drug therapy. Control group 1: Elderly patients with dementia who receive only medication. Intervention group 2: Caregivers of demented elderly who receive occupational therapy interventions and counseling. Control group 2: caregivers of demented elderly who do not receive occupational therapy interventions and counseling.
Main outcome variables
Patients: Patient Recognition Rate (ACE-R), Mini Mental State Examination score, Patient Balance Test (BERG) score. Caregivers: Depression, Anxiety, Caregiver burden, Life Balance Inventory, Loneliness Management Social and Emotional Adult (SALSA) and Time Management

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20191027045253N1
Registration date: 2020-05-01, 1399/02/12
Registration timing: retrospective

Last update: 2020-05-01, 1399/02/12
Update count: 0
Registration date
2020-05-01, 1399/02/12
Registrant information
Name
Marjan Ghandi
Name of organization / entity
Country
Iran (Islamic Republic of)
Phone
+98 21 3374 4307
Email address
m.ghandi@kmu.ac.ir
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2018-09-22, 1397/06/31
Expected recruitment end date
2019-09-20, 1398/06/29
Actual recruitment start date
2019-10-06, 1398/07/14
Actual recruitment end date
2019-11-05, 1398/08/14
Trial completion date
2019-12-20, 1398/09/29
Scientific title
Evaluation of the effectiveness of occupational therapy technology added to drug therapy compared to drug therapy alone among elderly people with dementia and their caregivers
Public title
Effectiveness of occupational therapy in dementia patients and their caregivers
Purpose
Health service research
Inclusion/Exclusion criteria
Inclusion criteria:
Age over 65 years Neurologist's diagnosis based on DSM-IV criteria for dementia Patients should be kept at home by official carers
Exclusion criteria:
Relatively severe and severe dementia Patient's unwillingness and no cooperation to intervene
Age
From 65 years old to 90 years old
Gender
Both
Phase
N/A
Groups that have been masked
  • Participant
  • Care provider
  • Investigator
Sample size
Target sample size: 120
Actual sample size reached: 100
Randomization (investigator's opinion)
Randomized
Randomization description
Patients were randomly assigned to the intervention (12 sessions of home therapy over 6 weeks) and control group (routine care without any occupational therapy), using the randomized block design (block of size four).
Blinding (investigator's opinion)
Triple blinded
Blinding description
Participants were divided into two groups: Group I and II: Elderly with Dementia and Control and Group III and IV: Informal caregivers of patients with Dementia and Control. Group I and II: Dementia Patients: Due to the intervention at home and pre and post tests at home, subjects were blinded to the intervention or control group. Group 3 and 4: Unofficial caregivers of dementia: Although pre and post tests were performed in the clinic and of course occupational therapy was also performed at home for the group, the subjects were blinded to what group they were in and They didn't know which group they were in. Occupational Therapy Intervention Providers: Given that pre and post-patient testing was performed by someone else, and we have used 4 different occupational therapists to intervene in this study, the intervention providers provided information on the patient's status at which stage of the disease were uninformed and did only the intervention and remained blind until after the analysis of the intervention.
Placebo
Not used
Assignment
Parallel
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Ethics committee of Kerman University of Medical Sciences
Street address
Kerman University of Medical Sciences,Medical University Campus,Haft-Bagh Highway, Kerman
City
Kerman
Province
Kerman
Postal code
7616913555
Approval date
2019-10-08, 1398/07/16
Ethics committee reference number
IR.KMU.REC.1398.329

Health conditions studied

1

Description of health condition studied
Dementia
ICD-10 code
F03.90
ICD-10 code description
Unspecified dementia without behavioral disturbance

Primary outcomes

1

Description
Patient's cognition
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Addenbrooke ҆s Cognitive Examination

2

Description
Cognitive evaluation of patients
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Mini-Mental State Examination

3

Description
Patient Balance
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
BERG Balance Scale

4

Description
Depression in patients with dementia
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Beck Depression Inventory ii

5

Description
Anxiety in caregivers of patients with dementia
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Beck Anxiety Inventory

6

Description
Caregiver Burden
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Caregiver Burden

7

Description
The life balance structure of caregivers
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Life Balance Inventory

8

Description
Social and emotional loneliness of caregivers
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Social and Emotional Loneliness Scale for Adults

9

Description
Time management of caregivers
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Time Management Questionnaire

Secondary outcomes

1

Description
Social skills
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Disability Assessment For Dementia

2

Description
Motor Abilities
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Timed “Up & Go” (TUG), Ten Meter , Chairstand, Barthel , Allen

3

Description
Quality of Life
Timepoint
Before the intervention and 6 weeks after the start of occupational therapy
Method of measurement
Euro Qol- 5 Dimension (in patients) AND World Health Organization Quality of Life-BREF (in Caregivers)

Intervention groups

1

Description
Intervention group 1: Elderly with dementia to reduce cognitive impairment and increase motor skills for 6 weeks (12 one-hour sessions, 2 times a week) by occupational therapist, occupational therapy intervention to enhance cognitive skills, enhance daily life skills, they received reinforcement and facilitation of motor skills at home.
Category
Rehabilitation

2

Description
Control group 1: Elderly patients with dementia who received only medication.This group performed the relevant tests (before) and was again taken after 6 weeks of testing.
Category
N/A

3

Description
Intervention group 2: Informal caregivers received 12 sessions of occupational therapy on how to treat patients with dementia and raise awareness about the cause of patients' behavioral problems and provide adaptive strategies to better perform the caregiver role and also to restore caregiver balance. These 12 sessions were performed as the first 5 sessions in the clinic, 2 sessions at the patient's home, 4 sessions via telephone counseling and the last session again in the clinic.
Category
Rehabilitation

4

Description
Control group 2: caregivers of patients with dementia who did not receive any intervention.
Category
N/A

Recruitment centers

1

Recruitment center
Name of recruitment center
Brain and Cognition Clinic
Full name of responsible person
Marjan Ghandi
Street address
No.18, Block 11, Ekhlas alley, Hooshmand street, Qods boulvard, Dolatabad, Tehran
City
Tehran
Province
Tehran
Postal code
18598-96163
Phone
+98 21 3374 4307
Email
marjanghandi89@gmail.com

2

Recruitment center
Name of recruitment center
Aging Medicine Clinic of Iran University of Medical Sciences
Full name of responsible person
Marjan Ghandi
Street address
No.18, Block 11, Ekhlas Alley, Hooshmand street, Qods boulvard, Dolatabad, Tehran
City
Tehran
Province
Tehran
Postal code
18598-96163
Phone
+98 21 3374 4307
Email
marjanghandi89@gmail.com

3

Recruitment center
Name of recruitment center
Jasmine Daily Rehabilitation Clinic
Full name of responsible person
Marjan Ghandi
Street address
No.18, Block 11, Ekhlas Alley, Hooshmand street, Qods boulvard, Dolatabad, Tehran
City
Tehran
Province
Tehran
Postal code
18598-96163
Phone
+98 21 3374 4307
Email
marjanghandi89@gmail.com

4

Recruitment center
Name of recruitment center
Arman Shayan Daily Rehabilitation Clinic
Full name of responsible person
Marjan Ghandi
Street address
No.18, Block 11, Ekhlas Alley, Hooshmand street, Qods boulvard, Dolatabad, Tehran
City
Tehran
Province
Tehran
Postal code
18598-96163
Phone
+98 21 3374 4307
Email
marjanghandi89@gmail.com

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Kerman University of Medical Sciences
Full name of responsible person
Dr Reza Dehnavieh
Street address
Medical University Campus, Kerman University of Medical Sciences, at the begining of Haft-Baghe Alavi Highway, Kerman,
City
Kerman
Province
Kerman
Postal code
7616913555
Phone
+98 34 3132 5856
Fax
+98 34 3132 5856
Email
rdehnavi@gmail.com
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
No
Title of funding source
Kerman University of Medical Sciences
Proportion provided by this source
100
Public or private sector
Private
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Other

Person responsible for general inquiries

Contact
Name of organization / entity
Iran University of Medical Sciences
Full name of responsible person
Dr.Mostafa Almasi Doughaee
Position
Assistant Professor
Latest degree
Specialist
Other areas of specialty/work
Neuroscience
Street address
No. 33, East Zartosht avenue, Valiasr street, Tehran
City
Tehran
Province
Tehran
Postal code
88802063
Phone
+98 21 8880 2063
Fax
+98 21 8880 2063
Email
A_mostafa108@yahoo.com

Person responsible for scientific inquiries

Contact
Name of organization / entity
Iran University of Medical Sciences
Full name of responsible person
Dr. Malat Akbarfahimi
Position
Associate Professor
Latest degree
Ph.D.
Other areas of specialty/work
Occupational Therapy
Street address
Maddarkaran St., Shahid Shah Nazari St., Mirdamad Boulevard, Tehran, Iran
City
تهران
Province
Tehran
Postal code
15459-13487
Phone
+98 21 2222 7124
Email
malahatfahimi@gmail.com

Person responsible for updating data

Contact
Name of organization / entity
Kerman University of Medical Sciences
Full name of responsible person
Dr. Reza Goodarzi
Position
Assistant Professor
Latest degree
Ph.D.
Other areas of specialty/work
Health Economy
Street address
Campus of the Kerman University of Medical Sciences, at the beginning of the Haft-Baghe Alavi axis
City
kerman
Province
Kerman
Postal code
7616913555
Phone
+98 34 3132 5700
Email
rgoudarzi@yahoo.com

Sharing plan

Deidentified Individual Participant Data Set (IPD)
Yes - There is a plan to make this available
Study Protocol
Yes - There is a plan to make this available
Statistical Analysis Plan
Yes - There is a plan to make this available
Informed Consent Form
Yes - There is a plan to make this available
Clinical Study Report
Yes - There is a plan to make this available
Analytic Code
Yes - There is a plan to make this available
Data Dictionary
Not applicable
Title and more details about the data/document
Information on the main outcome, which is the purpose of the trial, will be shared for use in future studies.
When the data will become available and for how long
6 months after analyzing and publishing the results
To whom data/document is available
Researchers and health policy makers
Under which criteria data/document could be used
To be used in research and through citation studies
From where data/document is obtainable
marjanghandi89@gmail.com
What processes are involved for a request to access data/document
After receiving the email, if reviewed and with the agreement of Kerman University of Medical Sciences, it will finally be emailed after 10 days.
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