Protocol summary

Study aim
Evaluation of neuro-inflammatory markers in patients with amyotrophic lateral sclerosis (ALS) after cell therapy with mesenchymal stem cells.
Design
Clinical trials without Contorol group , design for 21 patients.
Settings and conduct
Patients referred to clinics of Mashhad University of Medical Science and private sector visited by neurologist and by acquiring appreciation in case of having conditions, they will be enrolled. In Pastoor Hospital of Mashhad the number one million BM-MSC /kg BW in the form of Intrathechal (IT) and intravenous (IV) will be injected by a neurologist in the operating room and in completely sterile conditions to the patient . Before and after injection, patients will be evaluated in terms of immunological indices and clinical parameters
Participants/Inclusion and exclusion criteria
Inclusion criteria: Patients with ALS confirmed by a neurologist with an ALSFRS-R score between 31-46. Patients must have been treated with a stable dose of Rilozule for the previous 3 months. Patients should not have any other chronic diseases and should not use ventilators. Patients in the age range of 18 to 75 years. Exclusion criteria: Patients with malignancy. Patients with other chronic diseases. pregnancy Suffering from other neurodegenerative diseases. Simultaneous participation in other clinical trials
Intervention groups
Eligible patients will receive one million autologous BM mesenchymal stem cells /Kg BW as intravenous and intrathecal injections (with equal volume) 3 times with one month interval by a specialist doctor. In addition to cell therapy, patients will also receive other common treatments according to the expert doctor's opinion.
Main outcome variables
Earned score based on ALS-FRS test FVC measurement Evaluation of serum levels of cytokines, TNFα , MCP-1, NFL, GDNF Evaluation of MIR 206 , Mir338p, Mir133p expression

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20160809029275N5
Registration date: 2024-05-02, 1403/02/13
Registration timing: retrospective

Last update: 2024-05-02, 1403/02/13
Update count: 0
Registration date
2024-05-02, 1403/02/13
Registrant information
Name
Name of organization / entity
Country
Iran (Islamic Republic of)
Phone
+98 51376276015
Email address
tavakolaj@mums.ac.ir
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2022-12-22, 1401/10/01
Expected recruitment end date
2023-04-21, 1402/02/01
Actual recruitment start date
2022-12-22, 1401/10/01
Actual recruitment end date
2023-04-21, 1402/02/01
Trial completion date
2023-04-21, 1402/02/01
Scientific title
Evaluation of neuro-inflammatory markers for amyotrophic lateral sclerosis (ALS) patients before and after Mesenchymal Stem Cell (MSC) transplantation
Public title
Biomarkers evaluation following MSC therapy in ALS patients
Purpose
Treatment
Inclusion/Exclusion criteria
Inclusion criteria:
Patients with ALS confirmed by a neurologist with an ALSFRS-R score between 31-46. Patients must have been treated with a stable dose of Rilozule for the previous 3 months. Patients should not have any other chronic diseases and should not use ventilators. Patients in the age range of 18 to 75 years.
Exclusion criteria:
Patients with malignancy. Patients with other chronic diseases. pregnancy. Suffering from other neurodegenerative diseases. Simultaneous participation in other clinical trials
Age
From 18 years old to 75 years old
Gender
Both
Phase
2-3
Groups that have been masked
No information
Sample size
Target sample size: 25
Actual sample size reached: 21
Randomization (investigator's opinion)
N/A
Randomization description
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Single
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
کمیته اخلاق دانشگاه علوم پزشکی مشهد
Street address
Daneshgah Ave., Qureshi Building, Deputy of Research and Technology
City
Mashhad
Province
Razavi Khorasan
Postal code
9138813944
Approval date
2022-12-17, 1401/09/26
Ethics committee reference number
IR.MUMS.REC.1401.325

Health conditions studied

1

Description of health condition studied
Amyotrophic lateral sclerosis
ICD-10 code
G12.21
ICD-10 code description
Amyotrophic lateral sclerosis

Primary outcomes

1

Description
Earned score based on ALS-FRS test
Timepoint
Before, 1 and 2 months after injection of mesenchymal stem cells
Method of measurement
Standard Questionnaire

2

Description
FVC measurement
Timepoint
Before, 1 and 2 months after injection of mesenchymal stem cells
Method of measurement
Using Spirometery test

3

Description
Evaluation of serum levels of cytokines, TNFα , MCP-1, NFL, GDNF
Timepoint
Before, 1 and 2 months after injection of mesenchymal stem cells
Method of measurement
Using Elisa method

4

Description
Evaluation of MIR 206 , Mir338p, Mir133p expression
Timepoint
Before, 1 and 2 months after injection of mesenchymal stem cells
Method of measurement
Using the Real Time PCR method

Secondary outcomes

empty

Intervention groups

1

Description
Eligible patients will receive one million autologous BM mesenchymal stem cells /Kg BW as intravenous and intrathecal injections by a specialist doctor. The number of injected cells will be equal in both methods. The number of injections is three times and they are performed at a distance of one month from each other (in months zero, one and two of the study). In addition to cell therapy, patients will also receive other common treatments according to the expert doctor's opinion.
Category
Treatment - Other

Recruitment centers

1

Recruitment center
Name of recruitment center
Clinics of Mashhad University of Medical Sciences and the private sector
Full name of responsible person
دکتر امیررضا برومند
Street address
Ahmad Aabad Ave, Pastor Hospital
City
Mashhad
Province
Razavi Khorasan
Postal code
9137913316
Phone
+98 51 3844 0482
Email
Drboroumand2017@yahoo.com

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
دکتر سید جلیل توکل افشاری
Street address
Daneshgah Ave., Qureshi Building, Deputy of Research and Technology
City
Mashhad
Province
Razavi Khorasan
Postal code
9137913131
Phone
+98 51 3842 1023
Email
vce.em@mums.ac.ir
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Mashhad University of Medical Sciences
Proportion provided by this source
50
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

2

Sponsor
Name of organization / entity
Parnia knowledge base company
Full name of responsible person
دکتر سید جلیل توکل افشاری
Street address
Mashhad, Daneshgah Ave, Kafaei 1, Sadra Doctors Building, ground floor
City
Mashhad
Province
Razavi Khorasan
Postal code
9183786379
Phone
+98 51 3848 2194
Email
INFO@PARNIASTEMCELL.COM
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
No
Title of funding source
Parnia Knowledge based company
Proportion provided by this source
50
Public or private sector
Private
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Other

Person responsible for general inquiries

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Dr.Seyed Jalil Tavakol Afshari
Position
Professor
Latest degree
Ph.D.
Other areas of specialty/work
Immunology
Street address
Mashhad, Vakil Abad Boulevard, Azadi Square, Mashhad University of Medical Sciences
City
Mashhad
Province
Razavi Khorasan
Postal code
9137913131
Phone
+98 51 3844 0482
Email
Tavakolaj@mums.ac.ir

Person responsible for scientific inquiries

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Dr. Seyed Jalil Tavakal Afshari
Position
Professor
Latest degree
Ph.D.
Other areas of specialty/work
Immunology
Street address
Mashhad, Vakil Abad Boulevard, Azadi Square, Mashhad University of Medical Sciences
City
Mashhad
Province
Razavi Khorasan
Postal code
9137913131
Phone
0518421023
Email
Tavakolaj@mums.ac.ir

Person responsible for updating data

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Dr. Seyed Jalil Tavakal Afshari
Position
Professor
Latest degree
Ph.D.
Other areas of specialty/work
Immunology
Street address
Mashhad, Vakil Abad Boulevard, Azadi Square, Mashhad University of Medical Sciences
City
Mashhad
Province
Razavi Khorasan
Postal code
9137913131
Phone
0518421023
Email
Tavakolaj@mums.ac.ir

Sharing plan

Deidentified Individual Participant Data Set (IPD)
No - There is not a plan to make this available
Justification/reason for indecision/not sharing IPD
Confidentiality of patient information based on the informed consent form
Study Protocol
Undecided - It is not yet known if there will be a plan to make this available
Statistical Analysis Plan
Undecided - It is not yet known if there will be a plan to make this available
Informed Consent Form
Undecided - It is not yet known if there will be a plan to make this available
Clinical Study Report
Undecided - It is not yet known if there will be a plan to make this available
Analytic Code
Undecided - It is not yet known if there will be a plan to make this available
Data Dictionary
Undecided - It is not yet known if there will be a plan to make this available
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