Protocol summary

Study aim
Investigation of the effect of trehalose on symptoms of a PSP (progressive supranuclear palsy) patient
Design
This trial is a before-after trial without a control group and will be performed by participation of only one eligible patient.
Settings and conduct
This study will be conducted in Ghaem Hospital in Mashhad. In the current trial, one PSP patient who meets the inclusion criteria, will receive IV trehalose (15 gr per week) for 12 weeks. The mentioned outcomes will be compared before and after the intervention.
Participants/Inclusion and exclusion criteria
Inclusion Criteria: Patient with PSP (according to NINDS-PSP criteria), Satisfaction for participation in the research project. Exclusion Criteria: Uncontrolled and severe adverse event.
Intervention groups
Intervention group: IV Trehalose (15 g per week) for 12 weeks by Dr.Rajabi Pharmaceutical Co.
Main outcome variables
Primary outcome: Patient`s function using PSP-Rating Scale (PSP-RS). Secondary outcome: IL-6, C-Reactive Protein (CRP), Neutrophil-to-lymphocyte ratio (NLR). All outcomes will be assessed at baseline and after 3 months.

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20181022041407N5
Registration date: 2024-06-06, 1403/03/17
Registration timing: prospective

Last update: 2024-06-06, 1403/03/17
Update count: 0
Registration date
2024-06-06, 1403/03/17
Registrant information
Name
Maryam Emadzadeh
Name of organization / entity
Country
Iran (Islamic Republic of)
Phone
+98 51 3882 9262
Email address
emadzadehm@mums.ac.ir
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2024-07-22, 1403/05/01
Expected recruitment end date
2025-03-20, 1403/12/30
Actual recruitment start date
empty
Actual recruitment end date
empty
Trial completion date
empty
Scientific title
Investigation of the effect of trehalose on symptoms of a PSP (progressive supranuclear palsy) patient
Public title
Investigation the effect of trehalose on PSP
Purpose
Treatment
Inclusion/Exclusion criteria
Inclusion criteria:
Patient with PSP diagnosis (according to NINDS-PSP criteria) Satisfaction for participation in the research project
Exclusion criteria:
Uncontrolled and severe adverse event
Age
No age limit
Gender
Both
Phase
N/A
Groups that have been masked
No information
Sample size
Target sample size: 1
Randomization (investigator's opinion)
N/A
Randomization description
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Single
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Research Ethics Committee of School of Medicine at Mashhad University of Medical Sciences
Street address
Faculty of Medicine, University Campus, Azadi Square
City
Mashhad
Province
Razavi Khorasan
Postal code
9177948564
Approval date
2024-05-07, 1403/02/18
Ethics committee reference number
IR.MUMS.MEDICAL.REC.1403.061

Health conditions studied

1

Description of health condition studied
PSP (progressive supranuclear palsy)
ICD-10 code
G23.1
ICD-10 code description
Progressive supranuclear ophthalmoplegia [Steele-Richardson-Olszewski]

Primary outcomes

1

Description
Patient`s Function
Timepoint
Baseline and after 3 months
Method of measurement
Using the PSP rating scale (PSP-RS)

Secondary outcomes

1

Description
Interleukin-6 (IL-6)
Timepoint
Baseline and after 3 months
Method of measurement
Blood test

2

Description
C-Reactive Protein (CRP)
Timepoint
Baseline and after 3 months
Method of measurement
Blood test

3

Description
Neutrophil-to-lymphocyte ratio (NLR)
Timepoint
Baseline and after 3 months
Method of measurement
Blood test

Intervention groups

1

Description
Intervention group: IV Trehalose (15 g per week) for 12 weeks by Dr.Rajabi Pharmaceutical Co.
Category
Treatment - Drugs

Recruitment centers

1

Recruitment center
Name of recruitment center
Ghaem Hospital
Full name of responsible person
Maryam Emadzadeh
Street address
Ahmad Abad Blvd., Ghaem Hospital
City
Mashhad
Province
Razavi Khorasan
Postal code
9176699199
Phone
+98 915 558 4885
Email
maryamemadzadeh@yahoo.com

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Mohsen Tafaghodi
Street address
Ghoreshi Building, Daneshgah Street
City
Mashhad
Province
Razavi Khorasan
Postal code
9138813944
Phone
+98 51 3841 2081
Email
maryamemadzadeh@yahoo.com
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Mashhad University of Medical Sciences
Proportion provided by this source
100
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

Person responsible for general inquiries

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Maryam Emadzadeh
Position
Assistant Professor
Latest degree
Specialist
Other areas of specialty/work
Public Health/Community Medicine
Street address
Clinical Research Development Unit, Ghaem Hospital, Ahmadabad Blvd.
City
Mashhad
Province
Razavi Khorasan
Postal code
9176699199
Phone
+98 51 3841 7403
Email
maryamemadzadeh@yahoo.com

Person responsible for scientific inquiries

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Amihossein Sahebkar
Position
Professor
Latest degree
Ph.D.
Other areas of specialty/work
Pharmaceutical biotechnology
Street address
School of Pharmacy, University Campus, Azadi Square
City
Mashhad
Province
Razavi Khorasan
Postal code
9177948954
Phone
+98 51 3180 1100
Email
sahebkara@mums.ac.ir

Person responsible for updating data

Contact
Name of organization / entity
Mashhad University of Medical Sciences
Full name of responsible person
Maryam Emadzadeh
Position
Assistant Professor
Latest degree
Specialist
Other areas of specialty/work
Public Health/Community Medicine
Street address
Clinical Research Development Unit, Ghaem Hospital, Ahmadabad Blvd.
City
Mashhad
Province
Razavi Khorasan
Postal code
9176699199
Phone
+98 51 3841 7403
Email
maryamemadzadeh@yahoo.com

Sharing plan

Deidentified Individual Participant Data Set (IPD)
Undecided - It is not yet known if there will be a plan to make this available
Study Protocol
Undecided - It is not yet known if there will be a plan to make this available
Statistical Analysis Plan
Undecided - It is not yet known if there will be a plan to make this available
Informed Consent Form
Undecided - It is not yet known if there will be a plan to make this available
Clinical Study Report
Undecided - It is not yet known if there will be a plan to make this available
Analytic Code
Undecided - It is not yet known if there will be a plan to make this available
Data Dictionary
Undecided - It is not yet known if there will be a plan to make this available
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